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When Gidion Kaino Mandesi was
a young law student at the University of Dar Es Salaam, he wrote a paper on the legal status of visually impaired people in Tanzania. In carrying out his research, he discovered that Tanzanian family law and government policy did not adequately protect disabled people. They had problems accessing health services and education. They needed specialized legal aid. They were left behind, both socially and economically. In short, they needed the same opportunities and rights as other Tanzanians. To raise public awareness and to advocate for the human rights of people with disabilities, Mr. Mandesi established a civil society organization, the Disabled Organization for Legal Affairs and Social Economic Development (DOLASED).
Mr.
Mandesi, who is blind himself, recognized that Tanzanians who
are blind, deaf, albinos, deaf-blind , physically or mentally
disabled are especially vulnerable in the HIV/AIDS crisis because
the standard communications channels that inform and educate
other citizens simply do not reach them. In 2002, DOLASED wrote
a proposal to develop and introduce HIV/AIDS education materials
and peer support for deaf, blind, and handicapped persons in
selected rural and urban areas of Tanzania . "The latest census
shows that there are some 3.5 million handicapped people in Tanzania
who could benefit from specialized materials and support," said
Mandesi, now DOLASED's executive director. DOLASED is able to
carry out its project because it was awarded $122,000 via Tanzania
's innovative funding mechanism, the Rapid Funding Envelope for
HIV/AIDS. DOLASED was the first organization to receive an award
through this program.
RFE funding enables DOLASED to develop materials in Braille that will provide
information on HIV testing, preventing transmission of the virus, and practical
advice on caring for people with AIDS. The materials - most in Kiswahili with
some in English - are being produced on Tanzania 's single Braille printing
press. "We think we are the first organization to create these kinds of materials
in Braille," said Mandesi. DOLASED is now in the process of producing videotapes
that offer similar information, with sign language interpretation for the deaf
and hearing-impaired.
DOLASED operates in partnership with some half-dozen
organizations for blind, deaf, physically handicapped, albinos,
and mentally retarded persons in Tanzania , including the National
Federation of Disabled, Tanzania Albinos Society, Tanzania League
of the Blind, Tanzania Association of Physically Disabled, Tanzania
Association of Mentally Handicapped, and Tanzania Association
of the Deaf. "These groups have told us that their members need
the information and that they have a high incentive to use it.
We have joined hands with them to fight against the spread of
HIV/AIDS as a national disaster," said Mandesi. This constituency
receives technical support on HIV/AIDS from the African Medical
and Research Foundation (AMREF).
Through workshops scheduled over 12 months, DOLASED's RFE-funded project
will directly touch about 210 participants in three urban centers in Dar
Es Salaam, Bukoba (in Kagera region) and Tabora (in Tabora region) and in
three rural areas Sengerema (in Mwanza) Mpwapwa (in Dodoma) and Korogwe
(in Tanga). Peer educators (who are disabled themselves) and who live in
the community will be trained to convey correct messages about HIV control
measures. The project's benefits are expected to ripple outward - to the
large community represented by the associations for the disabled and to
the many families taking care of disabled people. DOLASED is using mass
media to publicize its efforts. Radio, TV, and newspaper coverage the organization
received in Dar Es Salaam shows that the public is interested. DOLASED has
raised awareness already.
The Braille information materials developed in the initial
workshops in May 2003 have had a positive impact, according to
Mandesi. Questionnaires administered before and after the workshops showed
that participants had gained knowledge about the proper use of condoms,
understood how to prevent HIV transmission, and had a better understanding
of how to take care of people with HIV/AIDS. "Before the workshop people
said they had heard about HIV. After the workshop people told us they were
now using condoms and were more willing to go for voluntary counseling and
testing. They say they know how to slow down the spread of HIV."
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More information on the Rapid Funding Envelope for HIV/AIDS
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